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Book Details :
Published on: 2015-02-24
Released on: 2015-02-24
Original language:

A father’s moving memoir of cystic fibrosis “captures a brave child’s legacy as well as the continuing fight against the genetic disease” (TheNew York Times). In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal. Given only two years to live by her doctors, the imaginative, excitable, and curious little girl battled through painful and frustrating physical-therapy sessions twice daily, as well as regular hospitalizations, bringing joy to the lives of everyone she touched. Despite her setbacks, brave Alex was determined to live life like a typical girl—going to school, playing with her friends, traveling with her family. Ultimately, however, she succumbed to the disease in 1980 at the age of eight. Award-winning author Frank Deford, celebrated primarily as a sportswriter, was also a budding novelist and biographer at the time of his daughter’s birth. Deford kept a journal of Alex’s courageous stand against the disease, documenting his family’s struggle to cope with and celebrate the daily fight she faced. This book is the result of that journal.Alex relives the events of those eight years: moments as heartwarming as when Alex recorded herself saying “I love you” so her brother could listen to her whenever he wanted, and as heartrending as the young girl’s tragic, dawning realization of her own very tenuous mortality, and her parents’ difficulty in trying to explain why. Though Alex is a sad story, it is also one of hope; her greatest wish was that someday a cure would be found. Deford has written a phenomenal memoir about an extraordinary little girl. Smiles For Life - Alex Boye' (An Anthem Song for 2015 ... Download this song on iTunes and help impact MANY lives!! ... Subscribe to my channel ... ALEX AND ANI Bracelets Necklaces Earrings and More ALEX AND ANI creates signature bracelets for women and men as well as charm necklaces earrings rings and more. Going on Now - Free Shipping on $75+! Alex Grey - Wikipedia Alex Grey (born November 29 1953) is an American visionary artist author teacher and Vajrayana practitioner. His body of work spans a variety of forms including ... Common Child Life Internship Application The Journey to Becoming Certified. The process of becoming a Certified Child Life Specialist (CCLS) includes degree course work and clinical experience requirements ... New Life Church Sioux Falls - A modern Church in the heart ... NEW LIFE CHURCH SIOUX FALLS SD New Life is a Modern and Fast Growing non-denominational Christian Church located in Downtown Sioux Falls 500 S. 1st Ave Alex Jones (Welsh presenter) - Wikipedia Early life. Jones was born in Ammanford Carmarthenshire and has a younger sister Jennie. Her first language at home was English but Jones was educated at the Welsh ... Alex Jones: 'I was a terrible looking child' - telegraph.co.uk I was painfully shy as a child. I had a very happy childhood wonderful parents and lots of friends but I couldnt converse with adults. Looking back my mum feels ... Alex Jones' Infowars: There's a war on for your mind! Infowars.com the home of the 1 Internet News Show in the World. Alex Grey The official website of visionary artist Alex Grey. ... The future is mystic. It holds many wonders. Its beauty and sorrow we will ever encounter. Julia's Life: Timeline The Julia Child Foundation for ... Explore our timeline to learn about Julia Child's life career and accomplishments. The Julia Child Foundation for Gastronomy and the Culinary Arts was created by ...
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